Hi and welcome to "A Cup of OJ"! This blog is so all of the friends and family of OJ Alexander and keep up to date through his fight against lung cancer. Thank you for stopping by and showing your support for him!

Tuesday, May 28, 2013

I'm Not Retarded! I Have Cancer!

Well where do I begin!? It blows my mind how fast time flies. Especially now that it has been two hours since I wrote the previous two sentences :). Here is the recap from the last 2 weeks:
  • Dr. Siever drained a liter of fluid from dad's pleural cavity. That is the amount of fluid that had accumulated in about 2.5 weeks since he was released from the hospital. To make this appointment really exciting, I fainted in the middle of the procedure. It was our most eventful appointment yet! The procedure, although only temporary, really made Dad feel better and more importantly breath better.
The excitement
A whole liter of fluid

The yellow portion on the left is the pleural cavity where Dad's fluid is accumulating. The right is a normal lung
  • This past week Dad had a PET scan. We met with Dr. Reuss (cardiologist) two days later and she let us know that we were essentially out of options. The cancer has spread and we are left with the options of hospice and chemo (which I will talk about later). The fluid around the heart is metastatic (cancerous) and with the hard, scar tissuey (totally know that isn't a word) pericardium, the heart and lymph system aren't working properly. Dad is in a state of cachexia (also called wasting syndrome) where basically the cancer is using all of the energy Dad is getting from his food. It makes people lose weight and appetite, fatigued, and weak. Although it wasn't the easiest appointment, Dr. Reuss was very honest, informative, and compassionate. While examining Dad she said "Your sentences are good!" and Dad replied with "I'm not retarded! I have cancer!" with the most real look on his face. The whole room was laughing and it is one of my favorite moments to date. 
  • Friday we met with Dr. Ejadi (chemo doctor). He talked a lot about what Dad could or could not do, what might or might not work for the first 25 minutes before stating that he didn't think chemo was a good idea. It was one of the first times that I really snapped back because I didn't understand why we were talking about chemo if he wasn't going to recommend it. Long story short, Dad is really not eligible for chemo, he is too weak. He also does not meet the criteria for a clinical trial. He could get a biopsy this week which would test for some other specific markers that might help but that takes 2-3 weeks just to process and Dad needs to decide if he feels strong enough to do it. 
Our favorite thing to do

Our warrior <3
From all of our appointments we have decided to bring hospice in. It is not us giving up on Dad but making sure that he has the access to care and meds that keep him out of pain. They have been great so far and have altered his medications to help him stay out of pain. The nurses and doctors are always on call and will come out whenever we need. They do not think Dad is ready to go to a hospice facility at the moment so until then we are watching a whole lot of old TV shows that were made way before I was born and doing whatever the heck we want :) Dad still has his "OJ" spirit and that beautiful glimmer in his eyes when we laugh. We have been so blessed to spend so much time together as a family, we couldn't ask for anything more!


Tonight was our last night together as a family for a while...Kristen is moving to South Carolina for Teach for America tomorrow! Kristen and I are driving out there just like Thelma and Louise (watch out world...seriously though, clear the road) and we are so excited. We will miss her so much, but we could not be more proud of her for going after her dreams and making them a reality.


Family <3


8 comments:

Cynthia said...

Praying for a peaceful journey, dear OJ, and for God's healing touch for your beautiful girls, family,and friends! You are a true warrior and I am so proud of how hard you are fighting. You are never far from my thoughts and prayers! LUV you all!! Cynthia

Anonymous said...

...tears running down my face....what a journey it has been. I love you.
LouAnn

Nancy Beets said...

~~ Great BIGGGG HUG...love you guys!!!~~

Ning Ridenoure said...

I am crying because I am so touched by the love, the spirit of OJ and all four of you. My heart is with you. Love and hugs. Have a safe trip.

Nancy Potts said...

One of my dearest friends is a hospice nurse, so I know you are in good hands. Those people are angels on Earth, and they will be such a blessing for you all. OJ, that smile of yours doesn't seem to be affected by any of this!! You are surrounded by beautiful, strong women, so I guess you have reason to smile! We are sending our love and prayers every day.

Anonymous said...

I think about you guys all the time wish I could just be there for some hugs , people keep telling us how much Easton looks like OJ so we feel like we have a little warrior inside our boy, we hope to be that lucky. love you guys so much Rox and Blake

larry kline said...

Thank you for sharing these tender, precious family moments. OJ is truly blessed with family and friends that appreciate and love him. God's speed to you all....larry

Ursulline said...

Tears run down my face as I read this. I choked as I watched you sleeping next to your Dad as it reminded me of myself when my Mom suffered a ruptured brain aneurysm this year and all I did was sleep next to her until she was better. My heart is so heavy for you and your family. I'm so amazed by your courage to blog and keep everyone updated on your Dad's journey. We never think we have to go through things like this so soon, but when it happens we want to cling on to every moment. I'm so happy to know you and only hope that you and your family's hearts heal with fullness. I know your Dad will watch over you and protect you throughout the rest of your lives. I said a prayer for your family today during mass and will continue to think about you.

God bless